Krabbe Disease research gets $2 million boost from federal government

Funding supports Hunter James Kelly Research Institute

Mike Baggerman
March 25, 2019 - 11:43 am

Photo of Hunter James Kelly at Buffalo Niagara Medical Campus. (WBEN Photo/Mike Baggerman)

BUFFALO, N.Y. (WBEN) - More than $2 million of federal funding was allocated towards research for krabbe disease at the Hunter James Kelly Research Institute at the University at Buffalo.

Congressman Brian Higgins made the announcement Monday at the Buffalo Niagara Medical Campus.

"This is just the latest of over $3.5 million of federal funding recently issued to the Hunter James Kelly Research Institute, an initiative that was spearheaded by the University at Buffalo and the Hunter's Hope Foundation, which was established by Jim and Jill Kelly in honor of their son, Hunter, who bravely fought this disease eight years ago," Higgins said.

Krabbe disease is a neurodegenerative disorder that occurs in one in every 100,000 people. It destroys the protective myelin in nerve cells and impacts the brain and spinal cord. It is often fatal.

Researchers will use the grant funding, which totals $2 million over five years, to increase the understanding of which cells are involved in Krabbe disease in order to identify limitations of today's treatments toward the goal of improved results.

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